1st Asia–Pacific Lysosomal Disease Conference
Christchurch, New Zealand, November 2008
LDNZ is pleased to announce that we will be hosting the Australasian MPS/Lysosomal Conference on 20–23 November 2008. Visit the Conference page for more details and download a registration pack.
The call for posters is now out. Please e-mail your poster abstract to Jenny with your registration by 1st October 2008.
Note: If you are intending to book accomodation at The Chateau,
please be aware that bookings close on 30 September.
Welcome to the website of LDNZ
LDNZ is a support group for families affected by lysosomal storage diseases.
In this website you will find
- a description of lysosomal storage diseases
- details on our group, including our objectives, charitable status and activities
- stories prepared by affected families, including links to some personal websites
- contact details for lysosomal storage disease support groups around the world
- copies of our newsletters and conference reports
- links to major pharmaceutical companies involved in developing and producing therapies for lysosomal storage diseases
Lysosomal storage diseases
Lysosomal storage diseases are inherited genetic defects that result in an enzyme deficiency, which prevents cells from performing their natural recycling function. This leads to a variety of progressive physical and/or mental deterioration. Approximately 180 New Zealand families are currently affected. Find out more here.
Visit Our Care Pages
Care pages are personal websites that can help families communicate with friends and loved ones during times of illnes and injury. They are a place where a family can place messages and news in a journal and share photos, and where friends and family can provide support and advice by placing messages
We have three families with care pages (for four children). Please visit the pages to share in their stories.
Contact us
If you have any questions or comments, please send us an e-mail.
Forums
Join us at our new forums and share your thoughts, advice and worries. You can find the forums here. For more information about the forums and how to use them, go to this page.
|
